I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.
Things were going so well. I thought I had beaten this beast of a disease. But last night proved wrong. Why is it revving up it’s torture engine again? Why is this happening? For the past 2 days I had a very slight rash on my stomach, thought it might be due to the chlorine in the pool…
Everyday is wonderful! Life is great! I have been doing awsome! No fevers, no throat pain, no rahses, no vomiting, just a bit of joint tenderness in the knees, wrists, and in the shoulders, along with the soles of my feet feel like on fire, but this is fine. I am taking UUGH…rather gulping down…
It must be the methotrexate. It has to be. What else could be causing this pain?? It feels like the soles o my feet ache and burn! All day, all night, sore feet, feels like walking on broken glass. And they are so swollen. I purchased 2 wooden shoe stretchers online. I have been cranking them…
What the hell is going on????? Every morning when I get out of bed the bottoms of my feet burn and my ankles feel fused, like they don’t want to flex. I walk like I’m walking on hot coals or barbed wire. I am in so much pain when I begin to walk the first steps out…
So, I’ve been on Methotrexate since march 1st. Things are going well except when I wake up my hands feel like they can’t make fists, as if they are bloated or thick, but they don’t look bloated. Another strange thing is the soles of my feet burn like heck when I get out of bed.…
I have been doing well. I don’t have any pain, I don’t have any fevers. I occasionally have sore joints in my hands when I wake up in the morning. They feel stiff and thick, and the soles of my feet feel tender (?). Strange. But other than these minor irritating things, I feel normal,…
I had a sore throat last night. I have the sniffles and I feel extremely fatigued this a.m. Great. Where did I catch this cold coming on?? Either from my neighbor who was sneezing all over the place and then told me he was very sick, or from the nurse who said she didn’t feel…
I have been feeling great! The steroids are tapering down and the methotrexate is doing it’s thing, I guess. I have energy and I sleep really well. I went for blood tests Monday to check Medrol levels, ferritin levels, etc. We will see where the ferritin level is now. Hopefully, back to normal. I am…
I hate what these steroids are doing to my face 😦 My face is so round and my cheeks look so fat and pudgy. But really, I am grateful that I am no longer feeling ill and that I am alive. Although, I did have a minor setback on Saturday when I ran around looking…
I have been feeling really good. I mean really, really healthy. I even started going to the gym, working out 20 minutes on the elliptical machine, 20 minutes with weights and walking on the treadmill almost daily. My parents came up to visit from Tucson yesterday and look for a home. I looked forward to…
Adult Onset Stills Disease 