First 24 hours on 4 medrol pills in am and 4 medrol pills in pm. Wow! I feel awesome. I have so much energy! I should go to Vegas because usually when I go there, I want to go to slepp at 10pm! Steroids take away all the horrible symptoms. And the best thing, NO…
My dose of medrol is low. My MD thought we were catching this relapse in time, so he put me on a 1/4 of the usual dosage i usually start on when i begin a relapse. He said: 2 in the am & 2 in the pm. Well, guess what, all was fine for this…
2010 4th of July was a super happy day, finally after 10 months of methotrexate, I weaned down so slowly, so that my body would never notice that I went off of it. 8 weeks later, I have an enlarged lymph node again, I have had 2 bouts of fevers. I saw a faint rash…
Read more Weaned off all Medication July 4th 2010, 8 weeks later,lymph node
Here I am again : ( I thought I was doing pretty well a few months ago. My M.D. took me off MTX and I was fine for 8 weeks then rash came back, then fevers started few days later. He put me back on a quick streoid dose with MTX and I was o.k.…
I guess what is so disappointing is I miss my old self. I miss my energetic body. I miss my endless energy. I miss knowing that my body could handle wonderful hours of exrecise at the gym. I miss being a workaholic. I miss working 6 days, sometimes seven days a week. I miss taking…
I went to the doctor yesterday, because the disease is rearing its ugly head. I waited in his waiting room. I saw him, along with 3 new residents he usually brings into the room. I always feel like a specimen on display when he says something like ” Here we have a classic presentation of…
I don’t know why this disease acts so radical. For 2 days I had almost zero rash, I felt fine, energy to spare. Then WHAM! I get a fever driving home last yesterday so bad that I had the heater turned up to 80 degrees, the windows down (the temperature outside was 100 degrees, because…
if it’s not one thing it’s another. I stopped taking vitamins. the iron was making me have terrible rash. but today, 2nd day NO RASH! I guess my ferritin still attracts iron?? i’ve been freezing all day. It sucks feeling like a popsicle all day. I hope it was just the aircond was too high…
I started back on MTX. It’s been several weeks now. I have also been SO diligent to take in as much folic acid as possible daily. I hav not even had one episode of burning feet, or feet that feel like walking on broken glass. It is true, you MUST ingest about 3000 mcg of…
I guess, I have to admit, that there are some positive things about having this weird disease. I have slowed down my lifestyle a little. I am very conscious about my energy expenditure and I think about how long each task might take. I do sometimes need reminding that I am about to overwhelm my…
