Keeping track of my disease, finding out what works, what doesn’t, what has happened during the course of this illness and tracking my medication episodes is a great help. It has helped me find out when I have relapsed and what has worked and what hasn’t. This is my personal journal of the journey with this uncommon disease. I hope it helps anybody who reads this, understand my personal experience with this uncommon disease. Please review my archives to read my about my journey.