9-2-08

My life changed on Sept 2nd 2008.  I work in various hospitals. I am an occupational therapist. My endurance has changed ever since I almost died of this mystery illness. On Sept 2nd, 2008, while working in the ICU, I began to feel cold, really cold. After working with a patient, 3 hours later, I had chills.…

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Sleep is my secret weapon.

I have found a secret weapon for healing keep flares away. Sleep. This month marks exactly 2 years since my last flare. I truly believe I have sidestepped a flare once or twice this past two years by sleeping and most of all monitoring my sleep with an app I found a couple years ago.…

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2 years NO Flare. Health is Good.

I have been feeling so good lately, and as we all know with this disease, don’t let this great feeling make you feel invincible. After the reaction to the vaccine, it’s been an exhausting road dealing with so many MDs: Cardiologists, SO many internists, Endocrinologists, CT Scans, Kidney function tests, bizarre diets to not disturb…

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