9-2-08

My life changed on Sept 2nd 2008.  I work in various hospitals. I am an occupational therapist. My endurance has changed ever since I almost died of this mystery illness. On Sept 2nd, 2008, while working in the ICU, I began to feel cold, really cold. After working with a patient, 3 hours later, I had chills.…

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2 years NO Flare. Health is Good.

I have been feeling so good lately, and as we all know with this disease, don’t let this great feeling make you feel invincible. After the reaction to the vaccine, it’s been an exhausting road dealing with so many MDs: Cardiologists, SO many internists, Endocrinologists, CT Scans, Kidney function tests, bizarre diets to not disturb…

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A year anniversary

I drew this morning coffee doodle because I felt we can all use a hug each day. So, this hug is for you. It’s been almost a year since my last flare. I think about this often. I probably shouldn’t dwell on it, but I keep savoring the days of perfect health. I wake up…

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