I don’t know why this disease acts so radical. For 2 days I had almost zero rash, I felt fine, energy to spare. Then WHAM! I get a fever driving home last yesterday so bad that I had the heater turned up to 80 degrees, the windows down (the temperature outside was 100 degrees, because I happen to live in phoenix, Az) plus I had 2 shirts on, one short sleeve, one long sleeve over it ( hospital is very chilly sometimes). The good thing though is, I don’t have joint pain. I don’t have chills. I don’t have coughing spasms. I don’t have pain over where my liver is. And I don’t have vomiting. But I do have a decreased appetite. I’m eating less and less every day. This is a bad sign t his is how I lost so much weight before (but, like I always say, nothing like a good disease to get you down to your goal weight).
I felt fine this morning. I slept 10 hours. I had sweats last night from the fever breaking at 1am. I went to yoga. It was heavenly being there. Yoga has become where my body loses all tension, stress or tightness. One thing is absolutely for sure. I go into a flare when my body gets very very fatigued. And to, tell you the truth, my body was at the brink of exhaustion yesterday afterwork. I need to think of a solution this dilemma. I will get back to you.
One other thing, I have read that this crazy disease is brought on by trauma. But how recent does the trauma have to be?? Does the body store traumatic events?? If so, well, then I guess I am a good candidate for the study. I have several traumatic events in my past. But doesn’t everybody?
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.