When, OH When will the face puffiness go down?? I still look like a chubby chipmunk!! I have been off of the steroids now for 2 weeks. I got off of them on NOvember 12th, but I guess I have to realize that I was on for 8 weeks, 2 weeks longer than I usually am whenever I relapse. I will stay on the Methotrextate. I will never go off of them. Unless, it begins to affect my liver, but the blood draws each month should monitor this. My muscles are not yet as strong as they used to be before I relapsed. I can tell when I jump rope. I get winded faster, but not as fast as when I started back up jumping rope last week. My endurance was only 5 minutes!! Poor!!
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.