2010 4th of July was a super happy day, finally after 10 months of methotrexate, I weaned down so slowly, so that my body would never notice that I went off of it. 8 weeks later, I have an enlarged lymph node again, I have had 2 bouts of fevers. I saw a faint rash developing today. I started to cry tonight as I looked in the mirror. I know this means that I have to start medrol agin adn then methotrexate again. I thought I had beaten this horrible disease. But no….
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.