First 24 hours on 4 medrol pills in am and 4 medrol pills in pm. Wow! I feel awesome. I have so much energy! I should go to Vegas because usually when I go there, I want to go to slepp at 10pm! Steroids take away all the horrible symptoms. And the best thing, NO pain in my shoulder, hips or spine!! No fever at 101, no shaking chills like yesterday morning, no crying. It is quite amazing that within 2 hours taking a high dose I feel so good. Not looking forward to bloated face though 😦 I lose a bunch of weight but gain a huge puffy head. I look like a loll-pop.
I slept about 3 hours last night. I was tired this morning, but then I took my am dosage and BING! Im alert and ready to take on the day. I know I will drop like a wilted flower in the desert and sleep sometime, but who knows when???. I just can not predict when. These medrol mess up my sleep so much. I got out of bed at 1:25am to gulp down a full dosage of Niquil to try and put me to sleep, but no use. The only thing that might work would be to sit through that boring play “Pride and Prejudice”. OMG, that was the most boring play I have ever seen! That would put me to sleep.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.