Easy does it

I have been feeling great!  The steroids are tapering down and the methotrexate is doing it’s thing, I guess.  I have energy and I sleep really well.  I went for blood tests Monday to check Medrol levels, ferritin levels, etc. We will see where the ferritin level is now.  Hopefully, back to normal. 

 I am anxious to get back to work!! It is hard to stay away from a career that I love so much!

 The interesting thing is I seem to have more energy now than I have ever had before in my life. I have more enthusiasm, I have more interests, I have more desire to learn more things and create more art, and publish a book and get my inventions off the ground, and learn new languages.

  I think I have a new disease called, I- can- do- it- all -itis” .  I guess it’s better than a  disease that makes you want to stomp on people’s feet, or a compulsion to plant poison ivy.   I guess I just have a passion for living.  I feel happy all the time.  I have realized that that we really do have a very short time on this planet.  I just want to make the most of it, make people happy, enjoy my career to the fullest, bring people joy, love and be loved.  There really isn’t much more in life than this.


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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

2 Comments Leave a comment

  1. Thank you for writing this blog. I was just recently diagnosed with Stills and although there is some information about it out there it is helpful to read of another persons experience knowing I am not alone in all this, Who else can understand the pain and discomfort that this disease brings? Nobody can understand what it’s really like unless you have experienced it yourself. It’s also very encouraging to see that you are getting better despite setbacks. How is your anti inflammatory diet going? Did you have gut issues prior to getting Stills? I am about to try Amy Myers The Autoimmune solution. Once again, thanks for this blog. Please keep updating!

    • Dear Karen, I am so happy that you are feeling better! Yes, you are so very correct, nobody could ever know the suffering this disease causes in its flaring grip. Through the last few years, I have been able to introduce and tolerate foods that would have been highly inflammatory to me. I now enjoy some pizza, raw tomatoes (they would cause me great discomfort during a flare). I have not heard of the diet you are planning on trying. It definitely worth a try! Wishing you ongoing good health.
      Stay healthy,

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