What the hell is going on????? Every morning when I get out of bed the bottoms of my feet burn and my ankles feel fused, like they don’t want to flex. I walk like I’m walking on hot coals or barbed wire. I am in so much pain when I begin to walk the first steps out of bed each day. My started to take some vitamins for nerve symptoms, but I don’t think it’s working yet 😦 . I can not wear pretty high heels because the soles of my feet ache and feel searing, and my feet are so fat they don’t fit inside. Something is strange. Something is wrong. But, my labs have come back normal . My shoulders hurt, more specifically, the deltoids are sore when I wake up, mildly similar like when I used to wake up when I was in the full-blown symptoms of Still’s. Except back in December, I would wake up screaming in pain, unable to move my arms to even feed myself. Sad…….don’t remind me 😦
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.