Just when I thought I was out of the woods

I’m heading towards a flare. I know I am. The rash is extreme, all over my abdomen, back, and towards my chest and neck. It has not spread to my legs or arms yet. I ‘m trying hard to stop it with steroids. But so far, the rash appears to be ignoring the stop signs by the Medrol. I also need to start the methotrexate tomorrow.  I’M SO DISAPPOINTED!!!  I’M ANGRY AT MY BODY FOR DOING THIS AGAIN! I thought it was done, this whole Still’s thing.  The lymph node is not as painful, but it is still there.  I just need to stop this before it becomes a flare. I should have stayed on methotrexate.  I’m so mad that I was taken off with just 2 months of good labs. I went to the gym today. I rode the bike, i took the coastal route on the visual monitor, then I did some weights, went to the locker room and got into the jacuzzi, then grabbed a towel soaked in ice and headed into the steam room. I didn’t have any rash then, i noticed as I walked past the mirrors as I headed for the showers. I don’t think the stress of the gym added to the rash, but did it?  I can’t live in a plastic box!  I can’t live just lying on the couch!  I need to participate in life! I need to livemy life and the Still’s needs to just go into remission…


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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

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