Things were going so well. I thought I had beaten this beast of a disease. But last night proved wrong. Why is it revving up it’s torture engine again? Why is this happening? For the past 2 days I had a very slight rash on my stomach, thought it might be due to the chlorine in the pool at the new gym we joined. I have been doing everything right. I eat so much folic acid to combat the joint tenderness in my knees, I gulp down, omega EPA/DHA oil twice a day, as told my physician. I use cellular drops in juice, I try my hardest to eat only organic foods, decrease everybit of stress in my life, get massages every week, blah, blah, blah…..But last night the rash covered my entire abdomen, my lower back and beginning to migrate on my upper thighs. But, I still don”t feel so worried (yet). I have not had a fever, or vomiting, or throat pain. I went to sleep last night, I felt fine. I don’t give the thought of Still’s disease a 2nd thought. But I rolled onto my right side in bed when I was about to go to sleep, and that’s when I felt the lump under my right arm pit. I started crying. “It’s starting again!!, It’s starting again!” I cried out of fear, not pain. I can’t let this horrible disease envelope me again. I will call Dr. Howard 1st thing in the morning and start Steroid medication immediately. We must prevent a relapse at all costs. I have the most wonderful husband in the world, he calmed me down, re-assured me that we will start all the medication again and fight this battle that might be starting again. It’s not supposed to be flaring. I thought the higher the ferritin level on onset meant the disease was acute, to last a short time, not chronic, where this curse could go on forever. I pray not.
Published by A personal blog of my rare and horrifying disease. Claudine Song
I acquired AOSD in 2008. I have suffered so terribly and have found things to help me regain my life. This my personal journal of mystery illness to diagnosis. I hope that I can help others with my experience and information. View more posts