I live with this type of strange anxiety. I have a feeling that I am not the only one who has AOSD and feels this sometimes, maybe all the time? No matter what I do, I have the thought of weighing out the consequences and take as many precautions as possible. But once in an…
I’ve been doing my best to stay safe. I hope all of you are too. I had a FaceTime doctors appointment with my rheumatologist a few days ago. I’m feeling fairly well. It was just a check up and check in. My MD keeps close tabs on his AOSD peeps during this COviD19 situation. I’m…
It was difficult during that time . And now, we all in a very difficult time together. And unfortunately, this landscape will be the “normal” for a while. I know you have the strength to get through this difficult time. You ask how I know this? It’s because we all have been through awful things…
What happens to the mind when it is flooded with the possibility that a mere contact with the wrong person can end your life? Well, it becomes paranoid. But after a while, a strange feeling of optimism evolves. A feeling of, “if I can beat this disease AOSD/Stills, then, not much else can be worse!”…
I feel like I am on a small boat in deep water that can turn turbulent at any moment. I feel as if I am drifting without oars or a compass, but I do have the light of the moon. And I have angels that are flying extra close to protect me. The fear of…
I am feeling a little concerned. I know the corona virus does affect the elderly and those with chronic diseases more fiercely than a healthy immune system. And Covid19 seems to hit the young and middle aged pretty hard who have compromised immune systems. And this is exactly why I have fear and higher caution…
I had an MD appointment today. I will be taking a break for a while. I have not felt well since the book reading. It was too much for me. I have found that I have endurance each day for about 2 hours after this i am extremely exhausted. After the Jaxon event, I slept…
Sometimes when you give up or reframe a dream or goal it may first feel like you are abandoning or quitting or feel not good enough or worthy of it. But sometimes, its really not that all. It probably means that you are putting another goal that is much more important as a replacement. Recently,…
Dear sweet friend, We all feel this way through our lives. Life is up and then life is down, sometimes really, really down. Life and times go good and then things go bad, really bad. Ive, Been there, since 2008, 12 years of being there with this damn disease. Really scary, BUT then the sun…
Adult Onset Stills Disease 