A little nervous about Corona Virus and AOSD
I am feeling a little concerned. I know the corona virus does affect the elderly and those with chronic diseases more fiercely than a healthy immune system. And Covid19 seems to hit the young and middle aged pretty hard who have compromised immune systems. And this is exactly why I have fear and higher caution than the normal immune system population.
I finally got off all meds November 20th. However, I had a stills flare that affected my eyes to horrid degree. The fear of going blind and the pain was tremendous, but I fought through it and I am now fine.
The lurking dragon is always a few feet behind me. I know it. I feel it. I felt it 2 days ago when I was over fatigued. I do all I can to stay healthy and safe from his intense wrath on my life. I am praying that this Corona virus does not lure the dragon to me. I pray that this dragon can not find me. My fear is not irrational. It is always a race to save me when the dragon clutches me But, with an extremely poor immune system the prognosis would be death if he ever buddies up with Covid19.
Please stay safe friends.
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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.
Dear Claudine, Lifting all up as we try to make something normal out of this tense time. We try to keep ourselves well on a good; harder to do so in these time. Social isolation is so hard. Thank you for reaching out.
I reiterate….Please stay safe.
Please stay safe Patty. Other AOSD sufferers have written to me privately. They are embarrassed for feeling paranoid. I too, feel a bit paranoid but the bat we can do is stay vigilant to strict hygiene and try to decrease community interaction. One woman wrote to me saying something that has been on my mind. She wrote “I barely survived my last flare in ICU for 3 weeks, I don’t have the strength to fight something like this”
I fear the same.
Please stay safe friend. Keep me posted how you are doing through this.
Your friend always,