I’ve been doing my best to stay safe. I hope all of you are too. I had a FaceTime doctors appointment with my rheumatologist a few days ago. I’m feeling fairly well. It was just a check up and check in. My MD keeps close tabs on his AOSD peeps during this COviD19 situation. I’m getting my labs drawn today. I have been feeling well, except when become extremely fatigued or become stressed. The chills and fever came on 2 days ago and stayed for 3 days. I slept about 13 hours each night. BUT no rash!! YAY! And now, thankfully, I feel good.
We talked about the COviD disease and I mentioned how eerily and freaky similar AOSD/Stills is to this new Covid disease. He agreed.
I’ve been thinking about this similarity a lot lately. Especially, the cases of the symptoms children are getting from Covid. I can’t help but wonder, is it related to Stills? I wonder if AOSD/Stills is a long lost cousin of COvID?? It just seems so strange how the suffering of the patients is almost identical. The spiking fevers to 103, the chattering teeth, the extreme joint pain, the rash, myocarditis, lymphadenopathy, splenomegaly, hepatic involvement, pleuritis, pleural effusions, pericarditis, cardiac tamponade, the cytokine storm. Call me crazy…… but this all seems very familiar to me due to the symptoms I’ve suffered with.
I would love for us to be part of study to find out more of this awful disease we share and find out if Covid 19 is related…..
I hope you are all feeling well.
Stay healthy friends.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.