UGH! I thought I was going to be able to sidestep the side effects of this shingles vaccine. I felt totally fine for about 10 hours and then WHAMMO! Fevers, drenching sweats, chills, joint pain, nausea and vomiting. I knew that there was a “possibility” of not feeling well….but I had no idea it would…
Last year was painful. Broken bones, Stills attacked my eyes, 2 flares and my immune system so ravaged the disease caused shingles in one eye and the stills disease to attack the other. So, this was an important day today, the decision to get the shingles shot. I had a very long discussion with the…
If these episodes of bad luck would just end, I could get on with my life. This past April I had a fracture in my right foot, that should have been healed by now. But again, back in the orthopedic doctor office to assess what’s going and why do I have such awful pain and…
Well, the MRI confirmed a broken bone in the Right foot this time. But at least, it was only 1 bone and not 3 like last time! This is good news!! It should heal fast, if I be a good patient. I am grateful that we demanded and performed the MRI the next day after…
I live with this type of strange anxiety. I have a feeling that I am not the only one who has AOSD and feels this sometimes, maybe all the time? No matter what I do, I have the thought of weighing out the consequences and take as many precautions as possible. But once in an…
I’ve been doing my best to stay safe. I hope all of you are too. I had a FaceTime doctors appointment with my rheumatologist a few days ago. I’m feeling fairly well. It was just a check up and check in. My MD keeps close tabs on his AOSD peeps during this COviD19 situation. I’m…
It was difficult during that time . And now, we all in a very difficult time together. And unfortunately, this landscape will be the “normal” for a while. I know you have the strength to get through this difficult time. You ask how I know this? It’s because we all have been through awful things…
What happens to the mind when it is flooded with the possibility that a mere contact with the wrong person can end your life? Well, it becomes paranoid. But after a while, a strange feeling of optimism evolves. A feeling of, “if I can beat this disease AOSD/Stills, then, not much else can be worse!”…
I feel like I am on a small boat in deep water that can turn turbulent at any moment. I feel as if I am drifting without oars or a compass, but I do have the light of the moon. And I have angels that are flying extra close to protect me. The fear of…
Adult Onset Stills Disease 