Having better days than I have in the past 2 years.

No, I am not about to say that I have zero pain. The foot pain is still an issue. But recent X-rays revealed no fracture. But strange pulling of ligament? Tendon? Pain still exists. It’s pretty much ok in the morning but as the day goes on the pain on top of the foot and along the side feels like a thick band is stretching that doesn’t want to stretch. Or when invert my foot inward, as if I’m trying to point my big toe or inside area of my foot down towards the floor while trying to point the pinky toe towards the ceiling. (I know probably doesn’t make any sense. UGH……this is what i go through when i try to explain to doctors

But overall, I can walk now. I’m back to walking my horse. I’m back to smiling almost the whole day! I’m back to bringing joy to others with my drawings. (You can find my doodles on Instagram. Morning Coffee Doodle. I am back to writing another children’s book, my 7th one ! I have more energy because I have been able to sleep through the night in 2 years. No pain waking me up.

The wacky (messed up) thing about the dragon is, yesterday when I was cooking dinner around 7pm, I all of a sudden had chills, teeth chattering. My 1st response was to get a sweater and sweat pants on. And then I realized, the a**hol# dragon was nearby and letting me know I may have overdone it today. I sat down, rested until the chills went away and then I resumed making dinner.

No flare for me. I will out trick you dragon every inch and every step I take.

Smile today.

Wishing you good health dragon slayers.

Claudine

Daily Update

A personal blog of my rare and awful disease. Claudine Song View All →

I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

2 Comments Leave a comment

  1. Hey!!!
    I was wondering if you ever figured out your foot pain? It sounds sooo similar to mine (I have SOJIA). We have done an ultrasound and x rays and each doctor contradicts the last. I am pushing for an MRI now. But I just came across your blog and was curious if you ever figured it out. Mine has been an issue for 2.5 years…ever since I had kids. Some days I manage…others I can’t bare weight by the end of the day. 😦 😦

    • Hello Christine, I am so sorry you have had foot pain for so long. That is a long time to be in pain. I do know that a lot of my pain was from my broken leg and 3 broken bones in my right foot 2 years ago. But they only did X-rays and no MRI for 5 months! UGH!!!!!
      My right foot broke last year and had a broken bone that several X-rays did not reveal. But, just as my left leg problem, I pushed for an MRI the same day as the negative X-ray to find out the truth of the pain. This time with the right foot, i demanded an MRI the same day because there was no way I was going to suffer again for many months and go into a flare. the fallen arches from being immobile for almost 2 years caused many issues with my feet. After the bone healed I still had pain, SO much pain from stretched ligaments so I bought the arch supports (I show in my previous post). AND WOW!!!!!! Changed my life, so much that I ended up buying 10 pairs (I know a bit obsessive but it was the 1st time in years i had ZERO pain. Now, I will NOT wear any shoes without them and I feel it is correcting my arches.
      I truly hope your MRI finds the problem. Perhaps try the arch supports I bought on Amazon?
      Hoping your pain decreases and leaves soon.
      Take care. Keep me posted .
      Claudine

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