I feel like I am on a small boat in deep water that can turn turbulent at any moment. I feel as if I am drifting without oars or a compass, but I do have the light of the moon. And I have angels that are flying extra close to protect me.
The fear of having a chronic inflammatory disease puts me on edge during this time. Mostly because, I barely survived the flares these past 2 years and all the crap I endured, from broken leg, to almost going blind. I do know now that if the dragon ever partnered with Señor Covid19, I would only have a 5% survival rate. And probably anybody with a systemic autoimmune, or the more lethal, Auto-inflammatory, disease would feel they were in a similar boat.
So for now, I am vigilant and scrupulous with distancing and hand hygiene. As, I respect that you are too.
This is no time to panic. But this is time to be educated and dedicated to what is happening. No heads in the sand please.
So, we wait and we stay concerned and be kind and we be compassionate. Now more than ever, be kind to all.
Sending out love to all to stay safe.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.