If these episodes of bad luck would just end, I could get on with my life. This past April I had a fracture in my right foot, that should have been healed by now. But again, back in the orthopedic doctor office to assess what’s going and why do I have such awful pain and…
Well, the MRI confirmed a broken bone in the Right foot this time. But at least, it was only 1 bone and not 3 like last time! This is good news!! It should heal fast, if I be a good patient. I am grateful that we demanded and performed the MRI the next day after…
I live with this type of strange anxiety. I have a feeling that I am not the only one who has AOSD and feels this sometimes, maybe all the time? No matter what I do, I have the thought of weighing out the consequences and take as many precautions as possible. But once in an…
I’ve been doing my best to stay safe. I hope all of you are too. I had a FaceTime doctors appointment with my rheumatologist a few days ago. I’m feeling fairly well. It was just a check up and check in. My MD keeps close tabs on his AOSD peeps during this COviD19 situation. I’m…
It was difficult during that time . And now, we all in a very difficult time together. And unfortunately, this landscape will be the “normal” for a while. I know you have the strength to get through this difficult time. You ask how I know this? It’s because we all have been through awful things…
What happens to the mind when it is flooded with the possibility that a mere contact with the wrong person can end your life? Well, it becomes paranoid. But after a while, a strange feeling of optimism evolves. A feeling of, “if I can beat this disease AOSD/Stills, then, not much else can be worse!”…
I feel like I am on a small boat in deep water that can turn turbulent at any moment. I feel as if I am drifting without oars or a compass, but I do have the light of the moon. And I have angels that are flying extra close to protect me. The fear of…
I am feeling a little concerned. I know the corona virus does affect the elderly and those with chronic diseases more fiercely than a healthy immune system. And Covid19 seems to hit the young and middle aged pretty hard who have compromised immune systems. And this is exactly why I have fear and higher caution…
I had an MD appointment today. I will be taking a break for a while. I have not felt well since the book reading. It was too much for me. I have found that I have endurance each day for about 2 hours after this i am extremely exhausted. After the Jaxon event, I slept…
Adult Onset Stills Disease 