I wasn’t doing too well on Monday Dec 1st. My rash was bright red, I had very swollen neck glands, my joints screamed in intense pain when I bent my right knee. I hold my knee tight when I need to flex it as I squeeze my eyes shut to hold back tears. My doctor appt was…
It’s been a difficult past 4 days. I barely sleep. I cough constantly. This spasm cough is terrible. Last night was one of the worst nights in 4 days. I bolted upright holding my right shoulder, crying. Getting back to laying position is harder than sitting up, because the arm has to move. So painful. …
I have been searching the Internet for my diagnosis. I think I found the exact match. The more I read about it, the more it matches. It seems to match everything I have been going through. It says that most initial onsets of the Adult Stills Disease begin with a high spiking fevers, one major organ…
I got a call from my doctor’s nurse. She asked if I could come in to look at lab results. I was eager to find out. He told me that my SED rate was elevated, my white blood cell count was markedly high. I asked him about Lupus, Rheumatoid arthritis, and any other disease he…
Read more Meet with MD about lab tests, possibility Still's Disease?
I went to the doctor today. I had a fever at 101, the rash was all over my body. I ached all over and my wrist joint was inflamed terribly, the joint was protruding from my skin about 1/2 inch high than my right wrist. I told him my symptoms. I gave him copies of…
On November 18th I felt pretty good!! Great maybe I am ready to go back to work!!!! I promise I will go slow!!!! My dept. supervisor knows that I will only work 4 hours, and slowly. I was given a light caseload. I was so happy to be at the hospital!! I missed my co-workers so…
On November 14th, I felt great!! I guess lying still for a whole month helped!! I thought was getting better. I felt I had kicked this illness. I cleaned the floors in the house, I washed clothes, I went grocery shopping, I cooked a great dinner for my husband. I made a delicious dessert. But then…
October was such a slow month for me, I slept so much. I dreamt of returning to the career I love so much. I love working in the hospital. I crave the critical knowledge needed for my career to provide treatment, or evaluations for patients. During October my muscles ached constantly. There were mornings that I…
It took me weeks to get my strength back, from Sept 19th – Sept 30th. I left my parents home after 2 weeks of recuperating there. My strength was so poor. While at my mother’s I could do nothing for myself. I was so weak. I had virtually no appetite. I could only eat half an…
My life changed on Sept 2nd 2008. I work in various hospitals. I am an occupational therapist. My endurance has changed ever since I almost died of this mystery illness. On Sept 2nd, 2008, while working in the ICU, I began to feel cold, really cold. After working with a patient, 3 hours later, I had chills.…
Adult Onset Stills Disease 