Wide awake

Here it is 3:40 am and I am still wide awake. These steroids are so weird. I have never had a problem sleeping 8 hours,  I’ve never had a sleep problem. But since I have started on these steroids,  I don’t sleep. I have absolutely no desire for sleep.  Every night,  middle of the night, my eyes pop open…

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CT scan now what?

I went for a check up today. To see how the steroids are doing. They are doing great, except for the sleeplessness.  Finally, finally I am getting a little appetite back, althoug I am still eating only a handful of food a day.  For instance, breakfast is one slice of a pear and a cup…

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Sleepless nights

It’s been a difficult past 4 days. I barely sleep. I cough constantly. This spasm cough is terrible. Last night was one of the worst nights in 4 days. I bolted upright holding my right shoulder, crying. Getting back to laying position is harder than sitting up, because the arm has to move. So painful. …

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Stills Disease?

I have been searching the Internet for my diagnosis. I think I found the exact match.  The more I read about it, the more it matches.  It seems to match everything I have been going through. It says that most initial onsets of the Adult Stills Disease begin with a high spiking fevers, one major organ…

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