OH Lord please, please help me. The steroids kept me awake all night. I hallucinated that there were kites flying in the bedroom. I hallucinated that there was a hot air balloon waiting for me outside on the balcony. I am glad I did not jump, I live on the 6th floor. Oh please dear lord keep me from hurting myself. I don’t like these steroids at all!!!!!!! I was up all night sweating, drenching sweats so bad that my hair was dripping wet, the sheets were soaked. Mitch helped me, I was shivering, shaking, so cold, so cold, freezing dripping wet with sweat. My husband helped me change my clothes, put down towels on the bed to soak up sweat and keep me warm, but 2 hours later, I was soaked with sweat again. My muscles and wrist joints inflamed ached so badly. I was crying. The rash so bad. My joints were aching, burning pain.
Dear lord, I begged, please have the doctor change my medication. I was so dizzy last night I had to walk along the walls to keep from falling. I don’t like theses steroids. I hope I don’t die. I feel like I’m dying. I’m so scared.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.