I arrived at the office. I feared being late and being turned away like that horrible day on December 5th. I almost started to cry when I could the doctors office. I need this appointment so badly, I kept saying to myself as I drove. I started to panic when I saw I only had 10 minutes to check in. While I drove, I was in so much pain, it rained today, the roads are slick, sky is gray. It is as miserable outside as I feel. Feels like I am dying. I need a cure. I need a diagnosis.
I checked in. The office was warm and friendly. The couches were inviting and felt like they were hugging me in reassurance that I had made the right decision to see this physician. I was called back by the nurse practitioner, she was so nice, so caring. She looked very concerned, and asked about my constant cough and vomiting episodes in front of her into the trash can. I told her that this is what happens 24 hours a day. I cough so hard, I can barely get 3 words out. Soon, Dr.Howard entered the room with 3 residents. They were all very nice. He asked the residents questions, attempting to get a diagnosis from one of them. They all inspected the extensive, bright red rash all over my body, each gasping at the sight, touching my skin gently. all of them concerned about my swollen neck glands, almost vomiting when I talked from the cough. They spent an hour with me. They were all since. I felt I might get help here. Dr. Howard looked at my thick stack of labs and old me that my Ferritin level was the highest he had ever seen in 20 years of practice. 11, 811 my ferritin level, at onset. He acknowledged that I must truly be suffering. He spoke to the medical residents again, they pondered different diagnosis’s. But then one finally spoke up with the right one: Still’s Disease. Dr. Howard, said “yes! exactly!” We spoke about treatment, I started to cry I was so happy, that I finally knew what I had, I found it on my own several weeks before, but I needed it confirmed. And now I was finally going to get treatment. Thank you God for leading me to this wonderful doctor.
He started me on a very high dose steroids, this blast of steroids will help cure me!!!! Thank you Lord!!! Thank you Lord for leading me to this wonderful caring team of doctors. I have never prayed for my health so hard before today, hoping that these steroids work.
Here I go taking the prednisone today. YAY!!!!!!! I’m on my way to get better!!!!!!! Finally!!!!!!!!!!
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.