I can’t go on like this. The pain, fevers, the rash, my neck gland swollen, my bones aching, my muscles in screaming pain. Please god, I need this appointment to find out really what I have. I think I know, I have done hundreds and hundreds of hours of research on the internet. I match every symptom of Still’s Disease.
Please, please God stop my suffering. I fear the evenings when all the symptoms come on full force. Every night at 7pm they all appear slowly then more violently, until my whole body is aching in spasms of pain from the fever and joint pain, and shaking from being so cold and can not get warm, fever raging at 102 degrees. Then the joint pain comes on. My knee or wrist, or ankle gets inflamed, the joint starts to swell and I squeeze the bone to try to stop it, but I cry so hard because the pain is so bad. The rash all over my body looks gruesome, rash building ontop of rash every day. My skin looks red an dpurple all over my legs, back, abdomen, neck arms. When the rash is at it’s worse, even my fingers are spotted. Please god, I pray daily to get better. I hope this doctor is caring and supportive.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.