Meet with MD about lab tests, possibility Still's Disease?

I got a call from my doctor’s nurse. She asked if I could come in to look at lab results.  I was eager to find out.

He told me that my SED rate was elevated, my white blood cell count was markedly high.

I asked him about Lupus, Rheumatoid arthritis, and any other disease he suspected. He replied, ” just don’t know, we need more blood tests to rule out some things”

Well, why didn’t he think of these the other day?? What is wrong with some doctors??

I have been puttng in hours and hours on the internet, I came across Adult Onset Stills Disease. I brought copies of the info I found. I told him about my liver enzymes and extremely high Ferritin levels. I told him that everything matches.

He didn’t seem to impressed really. But he said he would look over my internet material I had for him.

I feel like Im doing all the leg work.

Published by A personal blog of my rare and horrifying disease. Claudine Song

I acquired AOSD in 2008. I have suffered so terribly and have found things to help me regain my life. This my personal journal of mystery illness to diagnosis. I hope that I can help others with my experience and information.

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