Stills Disease?

I have been searching the Internet for my diagnosis. I think I found the exact match.  The more I read about it, the more it matches.  It seems to match everything I have been going through.

It says that most initial onsets of the Adult Stills Disease begin with a high spiking fevers, one major organ affected (mine was liver) with extremely high liver enzymes, a red spotted rash that does NOT itch, migrating joint pain, inflamed joints that occur randomly, fatigue, a high ferritin level, A negative RA and negative ANA blood test ( mine were negative at the hospital, now waiting on the new lab tests), A elevated SED rate, and elevated white blood cell count, mine are elevated.

One annoying thing that has been going on since the hosiptal is this dry cough I have. I gag, I almost vomit.  I can’t seem to get rid dry, hacking cough.   I cough all night.  I have coughing spasms 24 hours a day.

  The new blood tests are to reveal what my RA, ANA and C-Reactive protiens are now. 

I bet I have Still’s.

I just want this bizarre joint pain to go away. It happens at night when I’m asleep. It feels like somebody hits me with a hammer in one of my joints. Every night a new surprise of which joint will wake me with extreme pain, and crying.

Each night at 7 or 7:30 I get the red spots, sometimes so horrendously bright red, they are startling to look at , the fever begins and I can’t get warm enough.

I just want to know what to do about these symptoms.

I’m researching special diets and vitamins. I don’t do well with main-stream medicine, almost killed me in the hospital. How many other poor souls are suffering too?  I wish I could help them.

Published by A personal blog of my rare and horrifying disease. Claudine Song

I acquired AOSD in 2008. I have suffered so terribly and have found things to help me regain my life. This my personal journal of mystery illness to diagnosis. I hope that I can help others with my experience and information.

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