Sleeping away October

October was such a slow month for me, I slept so much. I  dreamt of returning to the career I love so much.   I love working in the hospital.  I crave the critical knowledge needed for my career to provide treatment, or evaluations for patients.

During October my muscles ached constantly. There were mornings that I could not lift my arms to brush my hair. I  had a hard time sleeping dut to pain. I ached in my shoulders, wrists, knees. I just kept waiting to get better.

The doctor’s told me to relax when I had left the hospital. There was no diagnosis for what I had.  The only thing that registered was an extremely high Feritin level, extremely high liver enzymes, spiked fevers, a rash, though brought on by antibiotics reaction. Joint pain, thought brought on by my immobility in the hospital, and constant vomiting there.  I had so many questions about my illness that should have gone away when I left the hospital.

How long would it take for this fatigue to go away?

Why do I keep getting fevers at 7:30 each night?

Why do I have a rash that gets worse in the evening?

Why does my right knee ache so badly, and it hurts so bad when I extend it?

I must get better soon. I can’t go on this way. I cry a lot. Where is my active lifestyle??  I miss my social life. I miss going out with my husband.  Now I am cooped up at home trying to get well. But when..


stillsdiseaseblog View All →

I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

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