October was such a slow month for me, I slept so much. I dreamt of returning to the career I love so much. I love working in the hospital. I crave the critical knowledge needed for my career to provide treatment, or evaluations for patients.
During October my muscles ached constantly. There were mornings that I could not lift my arms to brush my hair. I had a hard time sleeping dut to pain. I ached in my shoulders, wrists, knees. I just kept waiting to get better.
The doctor’s told me to relax when I had left the hospital. There was no diagnosis for what I had. The only thing that registered was an extremely high Feritin level, extremely high liver enzymes, spiked fevers, a rash, though brought on by antibiotics reaction. Joint pain, thought brought on by my immobility in the hospital, and constant vomiting there. I had so many questions about my illness that should have gone away when I left the hospital.
How long would it take for this fatigue to go away?
Why do I keep getting fevers at 7:30 each night?
Why do I have a rash that gets worse in the evening?
Why does my right knee ache so badly, and it hurts so bad when I extend it?
I must get better soon. I can’t go on this way. I cry a lot. Where is my active lifestyle?? I miss my social life. I miss going out with my husband. Now I am cooped up at home trying to get well. But when..
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.