I guess what is so disappointing is I miss my old self. I miss my energetic body. I miss my endless energy. I miss knowing that my body could handle wonderful hours of exrecise at the gym. I miss being a workaholic. I miss working 6 days, sometimes seven days a week. I miss taking…
I started back on MTX. It’s been several weeks now. I have also been SO diligent to take in as much folic acid as possible daily. I hav not even had one episode of burning feet, or feet that feel like walking on broken glass. It is true, you MUST ingest about 3000 mcg of…
I guess, I have to admit, that there are some positive things about having this weird disease. I have slowed down my lifestyle a little. I am very conscious about my energy expenditure and I think about how long each task might take. I do sometimes need reminding that I am about to overwhelm my…
The Day I say saw red spots on my abdomen, I thought for sure I was having an allergic reaction to the chlorine at the new gym. BUT NO. Still’s came back. So, I went to go see My doctor Friday, July 24th. I was paniced. The last thing I need is a flare. I…
I’m heading towards a flare. I know I am. The rash is extreme, all over my abdomen, back, and towards my chest and neck. It has not spread to my legs or arms yet. I ‘m trying hard to stop it with steroids. But so far, the rash appears to be ignoring the stop signs…
Everyday is wonderful! Life is great! I have been doing awsome! No fevers, no throat pain, no rahses, no vomiting, just a bit of joint tenderness in the knees, wrists, and in the shoulders, along with the soles of my feet feel like on fire, but this is fine. I am taking UUGH…rather gulping down…
It must be the methotrexate. It has to be. What else could be causing this pain?? It feels like the soles o my feet ache and burn! All day, all night, sore feet, feels like walking on broken glass. And they are so swollen. I purchased 2 wooden shoe stretchers online. I have been cranking them…
So, I’ve been on Methotrexate since march 1st. Things are going well except when I wake up my hands feel like they can’t make fists, as if they are bloated or thick, but they don’t look bloated. Another strange thing is the soles of my feet burn like heck when I get out of bed.…
I have been doing well. I don’t have any pain, I don’t have any fevers. I occasionally have sore joints in my hands when I wake up in the morning. They feel stiff and thick, and the soles of my feet feel tender (?). Strange. But other than these minor irritating things, I feel normal,…
I had a sore throat last night. I have the sniffles and I feel extremely fatigued this a.m. Great. Where did I catch this cold coming on?? Either from my neighbor who was sneezing all over the place and then told me he was very sick, or from the nurse who said she didn’t feel…
Adult Onset Stills Disease 