I have been procrastinating. It’s a strange feeling of “if I don’t go to the web page, maybe I can post something more cheerful. I am sorry I waited. Things has been awful. But, I’m glad to be alive, so I guess this balances things out. My flare on 1/28/19 was a doozy. What a…
Read more This Too Shall Pass, but the pain is so bad until it does :-(
The flare started on January 28th. It came on so fast it was strange. It was like the dragon said “I’m back! And you better watch out !” I have been on the Medrol for 6 weeks now and the methotrexate injections. It’s working well. I am feeling better. But, foolishly, one day I was…
Not at all like the years before when I flared, the doctors had no clue what to do with me. As my labs, back then climbed and my ferritin level reached 14,000. Right now we caught it 3000. All echo and heart monitoring is normal. Thank goodness.
Read more ED with a diagnosis this time gets the ball rolling
I know that stress is a huge component to Stills flares. The rash has come on slowly over the last 10 days, but I justified it as hives or emotions from having these broken bones for 6 months. I didn’t take the rash seriously until 2 days ago when I lost all appetite and got…
It’s been a journey I never want to take again. It’s been absolutely horrible this ordeal. In August I slipped on our flooded tile floor when I came down stairs. The floor had flooded with an inch of water everywhere. When my foot slipped on the water I hydroplaned across the floor. My left leg…
Could so many days of pain that does not subside bring on Still flare? I know it can, but I don’t want to even allow the thoughts to take hold in the universe. My poor leg. Our 1st floor of our house flooded and I came down the stairs and hydroplaned across the white tile…
Read more Caution. Extreme fatigue, high and constant pain can bring on a flare
I have been feeling very tired lately. Is it due to the weather change? Diet change, stress? Who knows. I had my labs done and everything seems fine. But as always, if I over do my activity or if the weather changes and I exert myself harder than usual, my fatigue is so tremendous that…
Read more Sleeping 14 to 16 hours makes it hard to have a life
Something has been changing. I wake up during the night with pain in my right hip, right knee and sometimes left wrist. When I get out of bed in the morning I have such intense pain in my knee, I can barely get down the stairs. I cry. I have so much to do and…
For the past 2 nights, around 6:45pm I begin to feel very lethargic. It’s not the typical, “Gee, what a long day its been, Im tired!”. It’s more like, as the minutes go by, at 7pm my throat feels like Ive been shouting all day, my body feels so exhausted and my eyes can no…
