Knock, Knock, it’s 7pm….

For the past 2 nights, around 6:45pm I begin to feel very lethargic. It’s not the typical, “Gee, what a long day its been, Im tired!”. It’s more like, as the minutes go by, at 7pm my throat feels like Ive been shouting all day, my body feels so exhausted and my eyes can no longer stay open.  By 7pm, I am cold, wearing a long sleeve shirt, leggings and thick socks and I go to sleep under 3 blankets.

I do not have any teeth chattering, rash, swollen lymph nodes (that I know of), constant headache, abdominal pain in the liver quadrant, frozen joints. Thank goodness. But, the 7pm marker time was the exact time my body used to flare and I would begin to scream out ion pain as my husband and I could see my joints turn tomatoe red and I would start to cough and then vomit. Thank goodness, thank goodness I do not have these symptoms. I pray to never have those again.

The low grade fever and extreme fatigue are worrisome and it is happening at the same time as the pattern that took over my life for years at 7pm.

I dont like 7pm. I feel that anybody with Stills has a clock hour that brings fear and a quick scan of their body for signs. I am hoping to ride this little blip on the health radar out and that it is nothing serious. I will get labs done very soon.

Stay healthy my friends,


Daily Update

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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

1 Comment Leave a comment

  1. I’m sorry to hear you’re not feeling well. I’ve recently been struggling with fatigue and an onset of joint pain that I haven’t had in years. This year, I’ve been reducing my dosage of actemra with my rheumatologist’s help, having convinced myself that maybe I can live without it. Seeing that I can’t has been more crushing than I thought it would be, but c’est la vie. Hang in there. As frustrating as this disease is, it at least forces me to remember all my blessings in life.

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