The dragon seems to lurk in the shadows. 

Ive had a good amount of energy for quite a while now, a few  years. But for a few days I have felt cold and tired. I push to keep myself doing what I usually do, workout at the gym, visit my horse at the barn, clean the bird fountain, errands, dinner with friends. 

Today the extreme fatigue level started to frighten me. Zero appetite. Today I could not do anything. Fever, joint pain, extreme fatigue and very cold. I put on sweat pants, a sweater and slept under 3 blankets. The fever broke at 3pm. 

Last night we had dinnner with friends, and I ate a burger and the bun. I rarely do this, since I stick to fish and chicken and vegetables. The sweats came on at bedtime, by 11pm, fever, achey wrists. Thank heaven no teeth chattering. I woke up at 7am, fortunately, I was not scheduled to work today. I went back to bed at 10am and slept until 3:30. 

I’ve been having more joint pain lately that I’ve been ignoring. It’s time to get some labs run. It’s time to see what’s going on. 

I know the anti-inflammatory diet works. But cheetos and quesadillas start calling my name and I fall off the anti-inflammatory diet. Today for the 1st time in years I downloaded the IF factor app that I lived by for years. It is time to follow the diet strictly again.  The more positive the food ranks on the list the less inflammation it causes. Negative ranked foods inflame me. I do not want to relapse, ever. I never want to be on high steroids and methotrexate again. 

I will keep you all posted. 
Stay healthy my friends, 


Daily Update

stillsdiseaseblog View All →

I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

2 Comments Leave a comment

  1. Dear Claudine,
    You have been on my mind and have been wondering how you have been doing. I pray this finds you doing well and your labs, if they show anything, may the show just a minor blip. I find myself doing the same thing. That as I get further from the “event”, I think I can “cheat” here and there and maybe not pay as close attention to the fatigue and other signs. Your note came at a time that I needed it to remind me to get back on track as I have been having subtle symptoms; not near as pronounced but indeed warnings.

    Please keep in touch and let me (us) know how you are doing and if we can doing anything for you as you have done so much with this blog. You are not alone and you have helped us to not feel alone.

    Much concern,

    • Dear Patty,
      Thank you so much for your kind words and caring. Yes, indeed, I wonder if my carefree and fun-loving diet additions of cheetos and Fritos and any other fun snack that ends with “itos” has taken me way off course and opened up a gate for the dragon to enter. Slowly, over the last couple years, I felt so normal that I began burning the candle at both ends, dinners with friends, minimal attention to fatigue, diet or illness. Maybe all this time I’ve been rolling out the red carpet for this dragon. I pray not. Please, let’s remind each other to not ignore small signs. Patty, I hope your signals are just that, small blinkers to get us back on track. Hoping you are doing well and never flare again.

      Stay well.

      Stay healthy my friends.


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