So much new pain

Something has been changing. I wake up during the night with pain in my right hip, right knee and sometimes left wrist. When I get out of bed in the morning I have such intense pain in my knee, I can barely get down the stairs. I cry. I have so much to do and such a great life I want to keep up with.

I have my beloved horse and it makes me cry that I can’t be the active person I usually am with him. I have my wonderful husband that I love to cook for and go out to dinner with.

Sometimes my right knee is warm to the touch, swollen but not always. My right hip area aches almost constantly. But strangely, most of the pain decreases during the day. I have been going to yoga trying to coax my body into feeling normal and flexible. But this morning after 3 days of yoga class, the pain was worse than ever.

So here I am at urgent care center. My rheumatologist is out of town on vacation. But I haven’t had to visit the office for over 6 years. So, this is why I am wondering and scared about what is going on with my joints. All this pain is very different from AOSD. AOSD flares always started with throat pain, a rash, high fever. I do get a fever around 4am (weird), and severe joint pain upon getting out of bed.

So, here I sit in the waiting room of the urgent care, with a bunch of people who obviously have the flu hoping all these symptoms go away soon so that I can live my wonderful life again .

Wishing you all good health,


Daily Update

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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.

1 Comment Leave a comment

  1. Lifting you and those taking care of you up in prayer. Hoping they listen and will run the labs and other test that will give some in sight. Terrifying time…..

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