I have been procrastinating. It’s a strange feeling of “if I don’t go to the web page, maybe I can post something more cheerful. I am sorry I waited. Things has been awful. But, I’m glad to be alive, so I guess this balances things out. My flare on 1/28/19 was a doozy.
What a nightmare of a flare. The symptoms came on like wildfire. The telltale cough. The feeling of freezing, although everyone else is warm, the evening arrives and the drenching sweats and chattering teeth so hard I feel as if they will shatter. The jaw pain from the spastic muscles of chattering.
The emergency room visit and IVs and the explaining and explaining, blah blah blah. They called my specialist and we started the labs and Medrol.
But why is the human mind like this ? Why do we think if we ignore it, it will go away. It’s a strange phenomenon.
It’s been 2 months. I have flared twice during this time.
One week when I just got sick of the Medrol and I said “SCREW THIS!!” In more colorful words.
I was fine for 24 hours and then……WHAMMO‼️‼️‼️‼️‼️I had never had a flare kick me in the ass so hard !
My fever went sky high -(102) I was vomiting repeatedly and had chills and chattering teeth and joint pain. And the strange thing, my eyes were leaking yellow pus and were so swollen shut I couldn’t see. I was terrified I was going to go blind. The other additional symptom was a raised, very red and pointed rash appears. NOT the typical rash. It was firm rash, very isolated to hips, thighs and abdomen. It went away in 2 weeks but it was odd.
I started the medrol and the MTX again and have not had a huge repeat.
Although, I cough when I get very tired and I feel like I’m going to collapse and cry from fatigue. The intensity of the fatigue is whole body pain. I drag my feet. I cry.
It sucks, but I’m alive. And if you’re reading this, then you are alive too.
And I am so glad you are here with me.
Well, time for the methotrexate injection. Live on. Love on.
Stay healthy my friends,
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.