ED with a diagnosis this time gets the ball rolling

Not at all like the years before when I flared, the doctors had no clue what to do with me. As my labs, back then climbed and my ferritin level reached 14,000. Right now we caught it 3000.

All echo and heart monitoring is normal. Thank goodness.

Published by A personal blog of my rare and horrifying disease. Claudine Song

I acquired AOSD in 2008. I have suffered so terribly and have found things to help me regain my life. This my personal journal of mystery illness to diagnosis. I hope that I can help others with my experience and information.

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