I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.
I have not slept very well these past 4 days. This always happens 4-6 weeks after last dose of Medrol. My hormones get SO messed up! I hate it! I get restless, night sweats, 2 periods a month, no sleep at all,then it all calms down when the medrol finally gets out of my system.…
Read more Rash Again! Im only 4 weeks away from last dose Medrol!! S*#T!!
I just finished the medrol less than 3 weeks ago.I also started, against my desire, going to 6 pills each Sunday evening. I get so nauseus afterwards. It’s difficult to sleep because the burning in my stomach and I feel so lethargic the next day. But I started the 6 pills as ordered. Although last…
I am feeling so much better, I don’t have the rash any longer, I have been off the medrol now for 2 weeks. I am no longer losing huge clumps of hair each time I wash hair. It frightens me so much to see such huge amounts of hair fall out at once. each time…
Read more Feeling better, except for the cabbage patch kid face
2nd day on steroids. I have not slept in 48 hours. Well, I guess if you count 3 hours last night between 2 am and 5 am sleeping, then I guess I slept. I took my dose of steroids this am again and I am revved up again for the day. The problem is the…
I have been off of the short medrol routine for about 2 weeks. Then we went to New Orleans this past weekend, I was exhausted from the flight, flight change, hungry and I had a severe rash all over my body when I arrived there. The next day, I spent sleeping until after noon and…
I worked all day today. Everyday at work is good day, but today, I must say, freaked me out. I went in to a room, the door was closed, so I went in and closed the door behind me and proceeded with my eval with a female meth addict who told me from the beginning…
Read more When you begin to consider that your job is actually killing you
When, OH When will the face puffiness go down?? I still look like a chubby chipmunk!! I have been off of the steroids now for 2 weeks. I got off of them on NOvember 12th, but I guess I have to realize that I was on for 8 weeks, 2 weeks longer than I usually…
The first time, 2 years ago, when I initially started on medrol, it took a long time before the effects took effect. Kind of like a marshmallow being thrown at an elephant, I didn’t even feel the medication for a long time. It took several months before, my body was overcoming the negative symptoms of…
First 24 hours on 4 medrol pills in am and 4 medrol pills in pm. Wow! I feel awesome. I have so much energy! I should go to Vegas because usually when I go there, I want to go to slepp at 10pm! Steroids take away all the horrible symptoms. And the best thing, NO…
My dose of medrol is low. My MD thought we were catching this relapse in time, so he put me on a 1/4 of the usual dosage i usually start on when i begin a relapse. He said: 2 in the am & 2 in the pm. Well, guess what, all was fine for this…
Adult Onset Stills Disease 