I am feeling so much better, I don’t have the rash any longer, I have been off the medrol now for 2 weeks. I am no longer losing huge clumps of hair each time I wash hair. It frightens me so much to see such huge amounts of hair fall out at once. each time I go medrol I lose so much hair!! But other hair begins to grow that is not normal!! I start to get a mustache!!!! WEIRD!! I can never wait to take the last dose of the steroid, but then I just can’t stand the 6 weeks after I get off medrol. My hormones are a mess, I am puffed up and I just feel odd. The steroids mess up a women’s hormones very, very bad. I have to wait for my face to deflate from the puffiness. I have changed my work schedule. I am trying to limit my days to 3, mondays-thurs-fridays. I will try my hardest to stick to this to avoid stressing my endurance. The new presidents position with Arizota will take my time with meetings and legislature and many ideas I have to make this organization the best it can be. I have an excellent team to work with who all have exceptional skills, intelligence, drive, passion and determination to remain dedicated to the field of OT. I am so fortunate. I am so excited to be the new president-elect. I just have to pull the reins on myself to keep from doing to much or end up in the hospital 😦 or relapse. Please Lord keep me healthy so remain strong. Please keep me from relapsing into this horrible disease.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.