I have been feeling great! The steroids are tapering down and the methotrexate is doing it’s thing, I guess. I have energy and I sleep really well. I went for blood tests Monday to check Medrol levels, ferritin levels, etc. We will see where the ferritin level is now. Hopefully, back to normal. I am…
I hate what these steroids are doing to my face 😦 My face is so round and my cheeks look so fat and pudgy. But really, I am grateful that I am no longer feeling ill and that I am alive. Although, I did have a minor setback on Saturday when I ran around looking…
I have been feeling really good. I mean really, really healthy. I even started going to the gym, working out 20 minutes on the elliptical machine, 20 minutes with weights and walking on the treadmill almost daily. My parents came up to visit from Tucson yesterday and look for a home. I looked forward to…
It’s 3am. I can’t sleep even though I took the Nyquil. This is becasue I am in terrible pain and have been up crying. I woke up with my knees throbbing and swollen. My husband is so caring and loving when I wake him up due to my pain. He has never, ever, ever been…
Well, I thought I was doing pretty well drinking chamomile tea before bedtime. It worked the other night. I slept 8 hours straight. But last night……it did not work at all. I drank my tea, felt sleepy at 9:30 and went to bed. At 12:30…….BING!! my eyes pop open, and I am wide awake. Super…
Man! Do I feel great!! These steroids are strong stuff for being such little pills, but they do the trick! I can honestly say that I have a new view on life. I am so much happier than before. Although I have always been a happy person, I just feel more thankful everyday that I…
Wow!! Now that I have regulated and understand the peaks of the steroids, I can tailor them so that I take them at hours that allow me to sleep. I have found that if I take the first set of steroids at 9am and take the 2nd set of steroids at 9pm, I can sleep.…
Here it is 3:40 am and I am still wide awake. These steroids are so weird. I have never had a problem sleeping 8 hours, I’ve never had a sleep problem. But since I have started on these steroids, I don’t sleep. I have absolutely no desire for sleep. Every night, middle of the night, my eyes pop open…
I arrived at the oncologists office at 9am as scheduled. I was cheerful and confident that the CT Scan was showing lymph nodes NOT cancer. Which is not the most popular attitude to have in a large cancer office, but I was making sure that I did not give the impression that I was scared. …
I went for a check up today. To see how the steroids are doing. They are doing great, except for the sleeplessness. Finally, finally I am getting a little appetite back, althoug I am still eating only a handful of food a day. For instance, breakfast is one slice of a pear and a cup…
Adult Onset Stills Disease 