I had a bad night. I think the fatigue from Saturday still has a hold of me. I tried weaning down from 3 pills since I have been doing so well, but I I will have to take the other pill tonight. I have had chills all day. I cant seem to get warm. Bad sign…
Here I am again : ( I thought I was doing pretty well a few months ago. My M.D. took me off MTX and I was fine for 8 weeks then rash came back, then fevers started few days later. He put me back on a quick streoid dose with MTX and I was o.k.…
I went to the doctor yesterday, because the disease is rearing its ugly head. I waited in his waiting room. I saw him, along with 3 new residents he usually brings into the room. I always feel like a specimen on display when he says something like ” Here we have a classic presentation of…
I don’t know why this disease acts so radical. For 2 days I had almost zero rash, I felt fine, energy to spare. Then WHAM! I get a fever driving home last yesterday so bad that I had the heater turned up to 80 degrees, the windows down (the temperature outside was 100 degrees, because…
if it’s not one thing it’s another. I stopped taking vitamins. the iron was making me have terrible rash. but today, 2nd day NO RASH! I guess my ferritin still attracts iron?? i’ve been freezing all day. It sucks feeling like a popsicle all day. I hope it was just the aircond was too high…
Things were going so well. I thought I had beaten this beast of a disease. But last night proved wrong. Why is it revving up it’s torture engine again? Why is this happening? For the past 2 days I had a very slight rash on my stomach, thought it might be due to the chlorine in the pool…
What the hell is going on????? Every morning when I get out of bed the bottoms of my feet burn and my ankles feel fused, like they don’t want to flex. I walk like I’m walking on hot coals or barbed wire. I am in so much pain when I begin to walk the first steps out…
Adult Onset Stills Disease 