I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.
Arizona gets hot, very hot. We have had many monsoons lately which brings the sweltering heat below 100 on some days. The evenings can still be as high as 95, which has always puzzled me, since most deserts get very cold at night, but I understand that it’s due to the large amount of concrete…
I worked at the hospital yesterday. It is not uncommon for me to spend extra time motivating and gently encouraging py patients to participate in therapy. I have found through my many years of being an occupational therapist, that a automatically decline to participate with a therapist has much more to do than just a…
Pompous. Yup, that’s a good word for the day. Well, actually that was the word of the day last Wednesday (july 22nd) when I decided, “Everything is going so well, I don’t need these STINKIN’ methotrexate pills any longer!!!” I’m done!!!!!!” I have felt fine for so long that I truly felt that I could…
I have not updated the blog for far too long. It is early morning and i have a work day ahead of me. I am healthy and have energy to do this. I love my career. I am an occupational therapist for a large inner city hospital. It is what I was meant to do,…
It has been a while my last post. Once in a while I would think about posting but felt like it could be an omen that I better let sleeping dogs lie. It is strange how the fear of a relapse can trigger a paranoid feeling. I am still on 2.5 mg of Methotrexate a…
I had my 1st appointment with the new rheumy yesterday, Dr. Ch. It went well. I think things started off a bit rocky because of the belief, although not entirely correct, was the reason I was leaving my previous rheumy. In part, it was due to the constant barrage of residents that were always present,…
I have learned to look at situations with different viewpoints. My initial viewpoint is usually from the view of a very personal insight (of course, as we all do) for example, somebody does something nice, we are happy, somebody does something mean, we get mad, somebody acts like an idiot, we get annoyed, etc etc.…
[Huge Sigh]…scared…but I feel must try one more time…so scared… I feel like running to the MTX bottle for the dose, but at the same time, I know I must try. I ask myself, why am I doing this? Would it kill me to stay on a super low dose? What’s the big deal if…
I have parted with my current Rheumatologist. He just seemed more interested in his residents that follow him. He is a nice man, however, just didn’t seem interested in my health, medication or anything, unless I flared, which is good and bad. So since I have been stable without a major flare since 2011, he…
It’s been 2 years since my last actual “full on, big time, sound the alarm, Katie bar the door relapse”. And somehow, somehow, I have chosen to vaguely remember it, but my family has full details to recall it easily. I did relapse each year for quite a while, due my Rheumatologist pulling me off…
Adult Onset Stills Disease 