I have parted with my current Rheumatologist. He just seemed more interested in his residents that follow him. He is a nice man, however, just didn’t seem interested in my health, medication or anything, unless I flared, which is good and bad. So since I have been stable without a major flare since 2011, he demanded that I stop the MTX. I have had mini-flares these past few years with minor rash at my neck area, minimal teeth chattering, some minor joint swelling, but not to the point of high fevers and debilitating pain requiring steroids since 2011. So he said he would not continue to see me unless I went off all meds. Seems strange, I felt. I gues, I was becoming a boring patient, just not exciting enough. So,I have a new appointment with a female Rheumy next week.
I do not have a real problems at this point, but a couple of irritating fragments of yesteryear’s flares. I have 2 joints, in my foot that flare when Im very exhausted. The bone grows bight red, burns and I must stop my activities for the day. This same stupid bone used to be so painful when I used to flare. Other than this, my left knee clicks. When I used to flare big-time, the left knee would “lock-up” during a major flare and when I would try to bend it during sleep, I would scream from the pain. Left shoulder would also lock up. Only minor pain at strange times.
My desire would be to get off of the 2 MTX I take weekly, but my fear is the relapse. If Im doing so well right now, why risk it??
Just wondering if my old Rheumy was right…..should I take a chance to see if I can manage without it……the fear of relapsing paralyzes me. I heard a patient died of AOSD last month in the hospital where I work. Again, as the others, her Rheumy kept pulling her off her meds when she was stable and each flare was worse than the previous. This frightens me so much….
Stay healthy my freinds,
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.