Arizona gets hot, very hot. We have had many monsoons lately which brings the sweltering heat below 100 on some days. The evenings can still be as high as 95, which has always puzzled me, since most deserts get very cold at night, but I understand that it’s due to the large amount of concrete and buildings. I understand that once a person gets AOSD there is always the probability of a flare again. The 1st few years were the worst of my life, ongoing flares for several years, and then they became less often and less often until lately no huge flares (Thank goodness, praying for ongoing good health). But it is not unusual for me to have strange moments of feeling extremely cold in the evenings, around 7pm when I used to have my flare onset. I take my temperature, no fever. I assess my fatigue level, low. I evaluate my diet, clean and unprocessed. But why do I need to bundle up in sweat pants and a long sleeve shirt and sit outside in the 98 degree weather on the patio to warm up? I end up going to sleep, later in the evening still freezing cold, extra blankets, but no fever really ever breaks. My husband feels it is the Stills remnants. I imagine it as the Stills monster tossing an invisible bucket of ice water on me, to remind me that it’s never really gone. I wake up feeling normal the next day and then it might be a few weeks or even months before this happens again. Oh well….keep calm and be stills free is the goal.
Stay healthy my friends,
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.