I have learned to look at situations with different viewpoints. My initial viewpoint is usually from the view of a very personal insight (of course, as we all do) for example, somebody does something nice, we are happy, somebody does something mean, we get mad, somebody acts like an idiot, we get annoyed, etc etc. So I have been trying a new experiment for the last 2 days, (ironically the universe has been giving me situations to try it out).
Yesterday, I had an appointment with a new Rheumy. I arrived on time and the receptionist said, Im sorry your appointment is not on our books. I said “I don’t understand, I received a confirmation call yesterday confirming my appointment, and I made the appointment a month ago and I make a post it note for every appointment and put it on my calendar that moment”. I thought back on the phone call and know that I did not mix this up. The receptionist said, “Well, Im sorry but that person who made your appointment no longer works here, and the person who called you yesterday, should have told you the date has been changed to April 7th, not for today, I guess she forgot to tell you, sorry, see you April 7th” She might as well told me “see you December 3rd of 2023”. Same feeling I received. Uncaring office staff. Poor attention to detail, is this how they run their office? Hmmmm…..
What!? Why would they call and confirm a date that was know longer in place?? What is wrong with people?? Do they go to work under the influence?? I took a deep breath as she wrote out a new appointment card for me. I wanted to yell at her, but whats the use? Don’t kill the messenger, although her blasé attitude deserved something! I said nothing and left. As I drove home, I thought what other way can I look at this? I decided that it must be a sign from above. Perhaps, she is not the right Rheumy for me? Perhaps I would be her 1st AOSD patient and she has no experience with Stills? Perhaps she is not as friendly as her health grades say? Either way, I took it as a sign and felt I owed an IOU to the universe for letting me use my alternative viewpoint ability. I felt much better afterwards and i still have an appointment on April 1st with another new Rheumy. I called them to reconfirm. They validated, “Yes, you have an appointment April 1st, the doctor has put an hour aside to visit with you. Please have a wonderful day”.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.