My endurance sucks! I hate having to curb my activities to get through the week without a fatigue crash. I had to go to San Diego, help do some moving, and I came home exhausted. But I had to work the next day, so I had to psych myself up to get through the day without collapsing. The nice thing is, I truly love, love, love my career. The disappointing thing is, when I hear and see the limited amount of units some of the other PRN people actually do in one day. I mean seriously, what the hell are they doing? Sleeping on a gurney somewhere in the hospital?? How can they do so little work? Or am I doing too much? I just do what I need to do, see the patients that need to be seen and gently persuade some patients that don’t necessarily feel like working with therapy, but almost all will when treated with gentleness and kindness. Then I came home had dinner plans and I collapsed into bed. Sunday, millions of errands, grocery shopping, rush home to put them away then grab an apple and get to horsemanship lessons, then rush home to make dinner. I know that my illness does not support my way of life and it has a very determined way of letting me know. I had chills last night and fever. I need to slow down now to avoid a relapse. Some things will have to wait and I must end this habit I have of taking on too much.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.