The blood pressure med, Bystolic that was given to me by the cardiologist was working for a few days but then stopped working and the heartbeat in my head keeps waking me up at 5am. This is so awful. I did have two 24hour urine tests, but the results are not back yet. The cardiologist had me do the urine tests. I will not know results until April 2nd. My feeling is that stress hormones are extremely out of whack. We will also be doing an ultra sound of my hearty and kidneys.
I have developed an anxiety problem now before I go to bed. Since this has been hoping on so many months, i feel panic at times. I know, i can calm myself down, and I do with mindfulness techniques . Each night now, it takes a lot of deep breathing to help me relax.
I have a new MD appointment with a nephrologist today at noon. I pray that he has some insight to this awful situation. When my head pounds I take my blood pressure at 5am and it reads 170/102. It does go down a bit during the day, but then goes back up again at 6pm. I take my medication at night but it doesn’t last through teh night for a full nights sleep.
I am optimistic that we will get to the bottom of this. I know it will resolve. But since January, it needs to resolve more quickly.
Writing in this online journal helps me feel peace. This is how this this online diary started when I was going through flares. Writing about my process gave me a calm heart.
Well…..I will find out more today.
Stay healthy friends.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.