For the past 4 weeks my right eye was terribly inflamed , extremely painful and horrible headaches all night. The ache was so bad that I would lay flat during the evening with ice packs over the eye to get relief. My sleep was non-existent for days and days. I lay all night with my hands on my face trying to soothe the pain.
The curious thing is the 1st eye doctor I went to told me that he had seen this in young children with Juvenile Stills disease but never in an adult.
I thought to myself “well, here we go again with the “never seen this before”. It’s always so depressing when I hear this because it means “I have no idea what to do to help you while you are suffering so badly”
He gave me steroid drops that I used as directed 3 times a day without any relief for 2 weeks.
I went to a new eye doctor , this time a neuro-opthamolgist
She examined me again and again, same as the 1st doctor, my eyesight is 20/20 in my right eye and my left eye strangely bionic . I can read the tiniest print without any problems at 56 years old. She said she had never seen this before. Well….again another 1st. I feel like I could make the Guinness book of world records by now.
The new eye doctor had nothing new to recommend. She recommended more lubrication eye drops (but eye is gooey enough and it feels SO gross). But, I did as I was told and the headaches remained.
Finally my husband suggested to try amoxicillin. Although both doctors said it was not bacterial. However, within 2 days the right eye cleared up. But now the left eye is extremely inflamed. It just started 24 hours ago. And the headaches again. This is so depressing.
I have an appointment with the neuro-ophthalmologist in 2 hours.
I have read online that many auto-inflammatory diseases and also auto-immune diseases can cause Uveyetis or also called eye inflammation of the sclera. It’s a dangerous situation that if not treated can cause blindness. I am fortunate that my eye exams are normal and not affecting my eye sight, eye pressure or structure. I just have Awful pain and gross clear goo and fluid and headaches.
I will start on the amoxicillin again. I ran out the day my right got better 2 days ago.
I pray that you all never get this from this stupid disease.
Please stay healthy my friends. I am wishing you all a very healthy new year.
I will keep you all posted.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.