I found a unique site that asks to write a sentence about your rate disease. I wrote this.
Today I had a wonderful and unique experience. I was washing dishes. I know right ? Wonderful, not!! But, really! Something shifted. I felt happy. I felt calm and serene and home.
Yes, home. When I recall all the days I’ve spent in hospitals this past year, 2018, being home in my kitchen and hands in soapy, hot water washing my dishes I felt peace. I didn’t really think about this until I was almost finished. But when I noticed it, I smiled and i felt content.
I smiled and I realized that it’s the mundane tasks that make our life. It’s the routines, the activities, the daily tasks that we privately, daily, routinely do that make us who we are. Nobody else does the tasks that we do, exactly like us. It’s ME. It’s you.
Grateful and so happy to be here. So happy that I’ve had this shift in attitude. Be thankful for the simple things. There are many people who will never get to enjoy them.
Stay healthy my friends.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.