There is NOTHING to like about having AOSD. We feel like we are dying. But if you can catch your flare in time, before you have to go to the hospital and before the frozen joints set in before the screaming out at night due to dragons grip on us, and before the teeth chattering and drenching sweats and muscle spasms that make me cry for ours, can say I love steroids.
I consider catching this flare this early as nirvana when the high proscription of meds begin to kill the dragon before he’s taken complete control.
Strange to say Nirvana right? But, when one lives through, literally hell, with this disease, catching it before the worst symptoms sets in is pure joy.
And this time, THIS TIME, we are catching it early!!! YEASSS💪🏼‼️
Kick that dragon butt!!!!!!
And the steroids, right now I consider it the breakfast of champions, is like eating Captain Crunch with strawberries and cold milk while watching the sun rise and hearing the birds chirping!
It’s the simple things that make me happy.
Thank you for being there.
Stay healthy my friends.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.