Well, the good news is my illness is not getting worse, the bad news is I must prevent myself from relapsing, as I came so close to in Philadelphia. I have been told that it is imperative, mandatory, that I abide by a special diet. I must do this diet as if my life depends on it, because in reality, it very well may be. I was told by by MD that I may have to start injections of a higher dose of methrotrexate, if we can not get this stupid disease under control. This would be terrible. My hair would start to fall out in clumps, my skin would get very dry, I would begin osteoporosis and the progression of my health would deteriorate. But the positive health ramifications would be that I would stop the rashes I get, stop the inching forward to relapse. The alternative to injections, I hope, is to follow this diet to the 10th degree. From today I vow to eliminate ALL wheat products from my diet, ALL sugar, All red meat, potatoes, dairy, and preservatives. The list is actually extremely extensive but this is the nitty-gritty, the gist of it. The focus is that I follow a diet that relies on an anti-inflammatory scale. I downloaded the scale and found out the most interesting things about the foods I ate. What I thought were “healthy”, such as bananas, tomatoes, yogurt, soy products, certain grains, etc. have been actually inflaming my body. The scale works by grading everything. I mean everything. The food item is then given a number. If the number is positive such as salmon then it is good for me. If its negative, like captain crunch cereal (-250), then I have just assaulted my body and I if I continue then I am making my disease worse and the road to injections is being paved by my weakness to control my food choice. Well today is day 1. I am eating in constant tiny portions just trying get a handle on this diet. So far, I like it. Mainly because I love fish, all types, and I love vegetables. I miss bread already 😦 and its only 3pm. I will keep you all posted. As Hippocrates said: Food is medicine.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.