Meet with MD about lab tests, possibility Still's Disease?
I got a call from my doctor’s nurse. She asked if I could come in to look at lab results. I was eager to find out.
He told me that my SED rate was elevated, my white blood cell count was markedly high.
I asked him about Lupus, Rheumatoid arthritis, and any other disease he suspected. He replied, ” just don’t know, we need more blood tests to rule out some things”
Well, why didn’t he think of these the other day?? What is wrong with some doctors??
I have been puttng in hours and hours on the internet, I came across Adult Onset Stills Disease. I brought copies of the info I found. I told him about my liver enzymes and extremely high Ferritin levels. I told him that everything matches.
He didn’t seem to impressed really. But he said he would look over my internet material I had for him.
I feel like Im doing all the leg work.
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I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.