It took me weeks to get my strength back, from Sept 19th – Sept 30th. I left my parents home after 2 weeks of recuperating there. My strength was so poor. While at my mother’s I could do nothing for myself. I was so weak. I had virtually no appetite. I could only eat half an egg and a slice of apple. I had fevers around the clock still up to 101, but not to 103 as in the hospital. I had a tremendous rash all over my back, torso and buttocks. Part of the light red rash were flat spots, non-itching, the other rash on my buttocks was like a raspberry, bumpy, extremely itchy.
There were clearly 2 different rashes going on. I didn’t know this at the time. I just figured one part of my body was worse than the other. My mother is an angel. She looked after me like I was a baby bird. I was so sick. I could not even have the strength to shower, my mother helped me with all tasks.
Eventually the fevers calmed to hover around 100 degrees, they seemed to return each day. My right knee was extremely sore, so sore that when I was sitting, I could not straighten it to stand. It was very red on the knee-cap, and I could feel a strong SNAP of something catching on something. The pain brings tears to my eyes.
I need 3 hour naps to get through the days. Fevers, muscle aches, painful glands in my throat, and red spots persist. My fatigue level doesn’t change much. I get tired so easily. When can I go grocery shopping without getting tired? I always need to come home and rest for an hour and then make dinner.
But, I am getting stronger, my endurance is slowly picking up. I figured I would kick this illness in the butt and go back to my beloved career, and never have this illness again by Septtember’s end.
Yeah right. What was I thinking? I will probbably be fine by mid-October for sure.
I acquired AOSD in 2008. I have suffered so terribly and have found ways to help me regain my life. This my personal journal of this mystery illness to diagnosis. I hope that I can help others with my experience and information.